Privacy Policy
What's your health story?
Effective date: 21 February 2024
→ Introduction
Welcome to What’s Your Health Story? a platform designed to collect real patient stories to improve healthcare. We are committed to protecting your privacy and ensuring that your data is used responsibly. This Privacy Policy explains how we collect, use, and safeguard your personal information.
→ Who we are
What’s Your Health Story? is operated by Unwritten LTD. Our mission is to amplify diverse patient voices to drive change in healthcare. If you have any questions about this policy, you can contact us at:
Email: privacy@whatsyourstory.health
Address: 124-128 City Road, London, EC1V 2NX, UK
→ What information we collect
We collect the following types of information:
- Personal information: Name, email address, phone number (only if provided by you).
- Demographic data: Age group, gender, ethnicity (only if shared by you).
- Health story & experiences: Your experiences with healthcare services, treatments, and access to care.
- Technical data: IP address, browser type, and device details to help improve our platform.
→ How we use your information
We use your data to:
- Improve healthcare: Your insights help researchers and healthcare organisations create better policies and services.
- Ensure data quality: We analyse responses to prevent spam and ensure authenticity.
- Provide updates (If you opt-in): We may send updates on how your story contributes to healthcare improvements.
- Enhance user experience: We analyse trends to improve our platform.
→ Data security & protection
We take data security seriously and implement safeguards such as:
- Encryption to protect your responses.
- Secure servers and access controls.
- Compliance with UK GDPR (General Data Protection Regulation) and US HIPAA (Health Insurance Portability and Accountability Act) to ensure privacy and security of health-related data.
→ Who we share your data with
We only share anonymous, aggregated insights with:
- Healthcare organisations and researchers (to improve healthcare policies and treatments).
- Patient advocacy groups (to support better patient care initiatives).
- Government and public health institutions (for health research and policy improvement).
We never share identifiable information without your consent.
→ Your rights & choices
Under UK GDPR and US privacy laws, you have the right to:
- Access your data: Request a copy of the information we hold about you.
- Edit or delete your data: You can update or remove your data at any time.
- Withdraw consent: Opt-out of any data collection or emails.
- Object to data processing: If you disagree with how we use your data, you can contact us.
- HIPAA protections: If you are in the US, your health data is protected under HIPAA regulations. You have rights regarding how your health information is used and disclosed.
To exercise these rights, email privacy@whatsyourstory.health
→ Cookies & tracking technologies
We use cookies to:
- Remember your preferences and improve your experience.
- Analyse platform usage to enhance functionality.
You can disable cookies in your browser settings at any time.
→ How long we keep your data
We retain your data only for as long as needed to fulfill its intended purpose. If you request deletion, we will remove your data within 30 days.
→ Compliance with US & UK Laws
We comply with the following privacy regulations:
- UK GDPR: Governing data collection, storage, and processing for UK users.
- US HIPAA: Protecting health information for US participants.
- CCPA (California Consumer Privacy Act): If you are a California resident, you have additional rights, including the right to request deletion of your data and to know how it is used.
→ Changes to this policy
We may update this policy to reflect changes in our platform or privacy laws. If we make significant changes, we will notify you via email (if opted in) or on our website.
→ Contact us
If you have any questions or concerns about this Privacy Policy, please contact us at:
- Email: privacy@whatsyourstory.health
- Address: 124-128 City Road, London, EC1V 2NX, UK
Thank you for trusting What’s Your Health Story? with your experience. Your voice matters.